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Fundraising for my dad's cancer treatment

  • Update for 19/09/2010

      19 September 2010

    There's less than a week before this cause closes, so this will be the last update. On September 4th, at 2:33 am, my dear pa Basil sadly passed away in Kuching. He died peacefully, without much struggle. My mum was beside him at the very end. We all miss him terribly - he was a wonderful man, a loving father - but he isn't suffering anymore. His funeral went well, and many of his old friends were able to send him off. We cremated him and brought his ashes home to Auckland. It was always his wish to return here. My family and I wish to express our endless gratitude towards everyone who has supported this cause. It has been a trying and difficult time, especially in the last 6 months, and your help has been tremendously helpful.? Many thanks and warm regards, Aaron

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  • Update for 26/08/2010

      26 August 2010

    Dad is thankfully out of China now, after his last round of NG:PDT, and back in our hometown of Kuching in Sarawak, Malaysia. It was a bit of a mission getting him on the plane but the journey was smooth. But he's still not well, prone to bouts of high fever and frequent coughing. It's relatively easier here with more family and friends to help out, and communication isn't a problem. But mum is really exhausted and misses home. We were devastated when he called for me and my brother to visit him because he felt had not long to live, so we flew in on Tuesday. He told mum that he had fought enough and was ready to go. He's lost so much more weight since I last saw him in China; his cheeks have sunken, his body not much more than skin and bone. It's really hard to see him like this. Our hope is to have him rest up here for 6-8 weeks - doc said he needed to wait out that period before getting a PET scan to determine the results of his treatment. We pray that he'll remain stable in this time.

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  • Update for 27/07/2010

      27 July 2010

    Got back a few weeks ago from Guangzhou, and since then dad's gone through yet another complication. After I left he yanked the feeding tube from his nose and after that the Yu Hao docs couldn't put it back in properly. So mum shifted him back to Wu Jing to check it out and they discovered his esophagus is now too narrow to put the feeding tube through. The only other option was to stick a feeding tube directly into the stomach. The operation went ok it seems but it's yet another setback. He's still too weak to start with the next course of NG:PDT - which he could've probably started already if he didn't have the operation. Now mum's worried about his breathing again :( apparently he's showing signs of shortness of breath, which means the tumour is pressing against his airway again. It doesn't appear there has been any significant improvement from the first round of NG:PDT, but we still hope for progress.

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  • Update for 02/07/2010

      2 July 2010

    Haven't had much time to sit down and write an update - the last week has been so crazy and busy, I haven't been this exhausted in so long. Dad's breathing tube operation went successfully on Monday - thank God. On Wednesday doc approved for him to be moved out of ICU into a separate observation room. He's extremely weak, it's really sad to see him so emaciated - he pretty much hasn't eaten anything in like 10 days or something, so he's all frail and skinny. One good thing is that his voice has come back. It's a bit hoarse but it's good to hear it. Yesterday we shifted from Wu Jing Hospital - which was where he was in ICU - back to Yu Hao - where the NG:PDT treatment takes place. It was this hospital originally where he started having his breathing troubles, and we were a bit hesitant to bring him back here because the hospital itself isn't as well-equpped as Wu Jing and if something critical happens, it'll be hell all over again for my mum. They don't even have an ambulance! But we decided it was better to be closer to where the treatment was, since moving my dad around wouldn't be a good idea since he's so weak. And we've set up in a fairly comfy room. He's about to go for the first part of his treatment which is drinking the agent. They will have to administer this through his feeding tube straight into his stomach because he's having problems swallowing now. He's spitting out a lot of phlegm. Basically the pattern of the treatment is one day he drinks the agent, next day he gets exposed to the light for an hour, next day drinks agent, etc and so forth. Here's hoping everything will go smoothly this time round. Time is running out.

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  • Update for 26/06/2010

      26 June 2010

    It doesn't get any easier with each passing day... Walking into ICU is such a dreadful feeling, but walking out is even worse. After yesterday's relatively ok ICU visit, dad seemed a bit tired and less attentive today. He's stable but any slight change is cause for worry. We can't afford to miss anything - everything should be questioned. He did however manage to crack a joke by writing on the whiteboard that he wanted a ""cold beer"" - he gets dry lips, and can't drink water normally as it hurts. So at least we know his mind is still healthy and fit - he even questioned/checked the liquid nutrition he's being fed for sugar content (he's diabetic). We're all just anxiously waiting until Monday comes around for this custom tube to be put in so he can get off the ventilator and out of ICU... it's so gruelling.

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  • Update for 25/06/2010

      25 June 2010

    We had a big scare last night. Mum received a call over dinner from the doctor in charge saying they had to save my dad as his shortness of breath got worse over the last day and they would need to insert a smaller, longer tube down his esophagus to help him breathe. Doing this carried the risk of him not getting enough oxgyen as they had to shut the machine down for a while to carry out the procedure. We waited maybe an excruciating 20 minutes for the phonecall to see if it worked - it honestly felt like forever - and thankfully it did. But that wait was so gruelling, like the whole world had stopped.... it's the closest to a life-or-death situation I've ever been in. That horrible feeling of waiting to hear if your loved one has made it. My mum is constantly on edge, as she sleeps with her cell next to her - and it's The Phonecall that we all dread and hope will never come.? The visit today was relatively better - not to say that it wasn't emotionally taxing: ICU is and will always be hell to visit - but with enough oxygen pumping into my dad he was a lot more alert today, his eyes almost animated when we spoke to him. He even did a quick smile. He's definitely still fighting and his strength isn't gone just yet. He could squeeze my hand, and it was a strong squeeze. He was even on-the-ball enough to communicate that he wanted 3 things written in Mandarin on the whiteboard so the nurses would understand his requirements, problems, etc. specifically his breathing, his excess mucous, and his dry lips. Let's hope he will remain this way for the next days until the custom tube arrives to be fitted in (the current one is also temporary). As last night's scare indicates, his airway is getting smaller due to the tumour so the sooner treatment can resume the better.

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  • Update for 23/06/2010

      23 June 2010

    I've added photos from today's ICU visit. I feel a bit conflicted about adding such personal photos on this very public forum, but I think they tell more than words ever could. Being in ICU for an hour is emotionally draining. We can only see from 3-4pm each day. He seemed a little better today because he could open his eyes and see us, whereas yesterday he was heavily drugged. We have to be cautious about not exciting or stressing him too much by being there because it'll affect his breathing. Doctor said not to cry too much in front of him and put up a positive front. He can't talk so he uses a white board to communicate with us. It's not always successful but it helps. In the photo above he wrote ""How's J"" (Jarrod, my brother) and ""How r my boys"" - so heartbreaking. I miss his voice. The next step is for him to get a custom tube long enough in to help him breathe properly. This tube will take about 3 days to arrive - and will also depend on the inflammation of the surgery from last week. More waiting, more costs, more anxiety for us. Each day in ICU is costing around NZ$1500. He's not well enough to be moved into a normal ward. The sooner the NG:PDT treatment can resume the better. He also wrote today that was ""TIRED"", and it seemed his bones were aching, probably from being bed-ridden for such a long time. I told him I wanted to take him to movies when he got back, and he nodded that he'd like that. More soon

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  • Update for 22/06/2010

      22 June 2010

    Hi all, My brother and I have arrived in Guangzhou, China to be with my mum and dad. Once again a lot has happened in the past week, and unfortunately it hasn't been good - which is the reason why we're here. Last week my dad started having breathing problems which caused him to have heart/panic attacks. The Next Generation: Photo Dynamic Therapy (NG: PDT)** treatment had to be halted for them to see to this problem before they can proceed. The difficult thing is the tumour is causing the breathing issues, but the tumour can't be treated when he has breathing problems. Specialists are trying to sort this out - somehow clear his airway - before moving to the next stage; they reckon it might take a week. **In terms of the effectiveness of this treatment - my dad had showed positive results, the tumour had shrunk apparently, after 2 sessions. And my mum said at the hospital where she was at there were patients near-death who were turned around by NG: PDT. So it is unfortunate that this breathing problem has occurred. [If you know anyone with cancer, I recommend them to seek this option as an alternative to chemo/radiation, etc; they are bringing the technology to Melbourne this year] Emotionally, we are all beyond devastated right now. Seeing my dad in ICU, with tubes coming out of him, looking so frail, there are no words to describe the overwhelming heartbreak we feel. My dad wants to come home to NZ. He has repeatedly said that. He's still fighting and he doesn't want to give up. I've missed him so much. And my poor mum - she's gone to hell and back being here on her own. If it weren't for NG: PDT reps kindly helping her out - with language translation, hospitality, etc - I don't know how she would've made it through. To make matters worse, the costs (medical, living, airfares etc) are stacking up and it's astronomical. We could've given up - but we just can't, especially when there are options left. My dad is still breathing. How do you just let someone you love die? My mum and dad have been together happily married for almost 35 years; my mum can't just give up on him like that. My dad has given me and my brother the most amazing love and care for the last 30 years; this is the least I can do to repay him back. I don't really know how to express the kind of trauma, stress and sadness we're all feeling right now. Those who've had loved ones succumb to cancer will know all to well, and I hope everyone else who is reading will understand - everything about it is absolutely horrible. All my wonderful friends and family - and anonymous donors - have been enormously supportive already, more than I can imagine, and we're all extremely moved - so I really hate to ask for more, but this IS a plea of desperation. After seeing my dad today... it's such a heartbreaking, horrifying thing to witness. I've never cried so much. We're at a complete loss. We need a miracle. And we still live in hope. I'll continue to report on my dad's condition while I'm here, and I'll try post photos tomorrow. Thanks, Aaron PS special thanks for Finbarr and Charlotte for the article in the Sunday News, and everyone who came along to the Blue Velvet benefit screening. PPS We're staying in a cheap hotel 10 minutes walk from the hospital. A bit of weird culture shock even though I'm Chinese. There are barely any English signs around and my Mandarin/Cantonese is non-existent.

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  • Update for 06/06/2010

      6 June 2010

    Hi everyone, Here's an update on my dad's situation as it stands. Since putting up this donation run on givealittle, the support that has come through from friends, family and strangers have been amazing. We've all been very moved by it and cannot thank everyone enough for their help. A lot has happened in the last month or so. If you've ever been in this sort of situation before, you know that the only thing that is certain is nothing is certain. When my dad saw his oncologist in early May for his scan results, he was told there was nothing they could do for him here in NZ - which basically amounted to saying he's going to do die. The doc said ""fistula"" had set in, a condition where the tumour has perforated the esophagus. But mum and dad went to Kuala Lumpur after that to consult 3 or 4 doctors for different opinions. They also did a PET scan and it showed that fistula had NOT set in. We had the option of doing 2 rounds of chemo and then wait to see how it goes - docs were hesitant to go straight into tomo after my dad's treatment in Guangzhou. But mum and dad decided against chemo because when he had it in NZ earlier this year the tumour grew back really fast and they'd rather kept dad's cells as healthy as possible. So now they are seeking possibly the last option via this new hospital in China. The treatment includes using High Intensity Focused Ultrasound, Brachytheraypy and Next Generation: Photo Dynamic Therapy. Of course it's all extremely costly. The docs suggested 2 or 3 courses of the treatment. Currently projected costs are $56K I was just talking to mum and my dad had to be admitted to hospital for a couple of days because he has trouble breathing now because of the tumour. They are planning to fly out to China either on Tuesday or Wednesday. Needless to say it's all very emotionally distressing, and time is running out. All I can do is try and push this fundraiser for its remaining 50 or so days. With the help of some friends, I've also organised a benefit movie screening of BLUE VELVET at the Academy Cinemas in Auckland on June 18th; click here for more info stars Dennis Hopper who recently passed away from prostrate cancer. There's also an auction running on trademe at the moment which my friend set up for a FIFA World Cup football signed by Rory Fallon:

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    • 18/07/2010 by Adriana Kennach

      Hi everyone, Here's an update on my dad's situation as it stands. Since putting up this donation run on givealittle, the support that has come through from friends, family and strangers have been amazing. We've all been very moved by it and cannot thank everyone enough for their help. A lot has happened in the last month or so. If you've ever been in this sort of situation before, you know that the only thing that is certain is nothing is certain. When my dad saw his oncologist in early May for his scan results, he was told there was nothing they could do for him here in NZ - which basically amounted to saying he's going to do die. The doc said ""fistula"" had set in, a condition where the tumour has perforated the esophagus. But mum and dad went to Kuala Lumpur after that to consult 3 or 4 doctors for different opinions. They also did a PET scan and it showed that fistula had NOT set in. We had the option of doing 2 rounds of chemo and then wait to see how it goes - docs were hesitant to go straight into tomo after my dad's treatment in Guangzhou. But mum and dad decided against chemo because when he had it in NZ earlier this year the tumour grew back really fast and they'd rather kept dad's cells as healthy as possible. So now they are seeking possibly the last option via this new hospital in China. The treatment includes using High Intensity Focused Ultrasound, Brachytheraypy and Next Generation: Photo Dynamic Therapy. Of course it's all extremely costly. The docs suggested 2 or 3 courses of the treatment. Currently projected costs are $56K I was just talking to mum and my dad had to be admitted to hospital for a couple of days because he has trouble breathing now because of the tumour. They are planning to fly out to China either on Tuesday or Wednesday. Needless to say it's all very emotionally distressing, and time is running out. All I can do is try and push this fundraiser for its remaining 50 or so days. With the help of some friends, I've also organised a benefit movie screening of BLUE VELVET at the Academy Cinemas in Auckland on June 18th; click here for more info stars Dennis Hopper who recently passed away from prostrate cancer. There's also an auction running on trademe at the moment which my friend set up for a FIFA World Cup football signed by Rory Fallon: