Will to Live

$28,181 donated
Given by 246 generous donors in around 12 months

People like Wilhelmina don't come along every day. Please help her and her family as she battles breast and liver cancer.

Wellington

Wilhelmina Van der Aa goes by many names: Wilhelmina, Mama, Mina, Willow, Wils, Mama Wil which reflects just how far and wide she is known and loved.

She is the adored wife of Charles and devoted Mama to her 4 amazing daughters, Sacha (14), Alayna (12), Freya (9) and Aurelia (7). Much loved sister and aunt, cherished friend and neighbourhood crusader. She's also a second mum, Mama Wil to her many past and present Porse children.

Her life has always been about people, from nursing those with end-stage cancer, to psycho-therapy training, to her current role as a Porse Educator, she is devoted to helping and supporting others both in her career and personal life.

In November 2014, her life changed forever. A lump was discovered in her right breast. After various ultrasounds, MRIs and CAT scans, one lump turned out to be five and involved her lymph nodes, plus two more were found in her left breast, although Wilhelmina was told they were 99% sure the left side was nothing.

On 23rd December, just two days before Christmas, she got the final diagnosis. After a lot of frustrating back and forth it was confirmed: Ductal Carcinoma in Situ in her right breast, a very aggressive cancer with lymph node involvement and Ductal Carcinoma Tubular in her left breast. Then just to add some more fun, Wilhelmina was also told about a 'slightly suspect' Haemangioma (abnormal collection of blood vessels) on her liver which they were again 99% sure was nothing.

A treatment plan was put in place for surgery in January 2015, a bilateral mastectomy and removal of the affected lymph nodes. After further discussion, they decided against immediate surgery in lieu of 6 months chemotherapy to reduce the tumours and then review for the surgery. This would also help to confirm diagnosis of the liver Haemangioma. If this beastie shrunk, it would confirm it was also cancer. If not, they were in the clear.

For the next six months Wilhelmina endured chemotherapy and all that came with it - nausea and vomiting, hair loss, weight gain, general feelings of fogginess - all while continuing in her role as Porse Educator. Charles also gained his Porse Educator qualifications, just to help ease her burden. She has often been heard to say, 'The children will be my cure'.

On 25th May, Charles and Wilhelmina's wedding anniversary, she had an abdominal scan by chance. The next day was her routine surgeon appointment for her surgery plan. All looked good, the tumours had shrunk and it looked better than expected. However, the abdominal scan showed her liver tumour had also shrunk. Her worst fears were confirmed, the cancer had spread from her breast to liver. This means there's no point in operating. Her surgeon even said, 'Taking your breasts off would not extend your life any longer'. Also, because of the location of the tumour on Wilhelmina's liver, it's not operable. Currently her doctor's plan is to wait and see...wait for bulges and growths to appear out of her skin, getting smelly, then they can be lopped off. Her oncologist said, 'I don't know what to do with you". The Cancer Society were very kind, however when asked how they can help, they could only offer counselling. Wilhelmina is not interested in getting 'help to die', it's not her style nor is it helpful to her. So she has said in true style, 'I will heal myself' and that's what she intends to do....look at every alternative available, but unfortunately, it all costs. She is currently researching a full range of options. Vitamin C therapy, Oxygenation therapy, even the Arcadia Clinic in Germany. She has made significant lifestyle changes to do what she can, eating vegan, meditation, exercise, kinesiology and Chinese medicine. She has not been given an indication of her time left, it could be 2 years, it could be 30 years - Wilhelmina intends to make it the latter.

She desperately wants to live...she has so much to live for and so many people want and need her to stay around! Well, now it's time to get some of that support she has given all her life, given back to her. She was initially against this page being set up - it didn't sit well with her. But as time has gone on, treatments have been suffered through and it's taken a toll on her, she's realised that some help to ease at least the financial burden would be worthwhile.

Please spare a few dollars when you can so this amazing family can have a little relief as they go through this journey. Wilhelmina has promised to send through updates and we will keep this page updated.

Thank you

Lauren Fantham's involvement (page creator)

I am privileged to be a neighbour of Wil and her family. She is Mama Wil to my daughter Poppy as her Porse Educator. They are our extended family who would do anything for anyone and we cherish them.

Read more

Latest update

CANCER - My Magical Mystery Tour (MMT) or THIS IS absolutely, categorically, indubitably and seriously, seriously NOT a (BLEEP) journey! January 2016  14 January 2016

Faithful Friends,

I just took a moment to breathe (awfully useful when one forgets sometimes) to sit and reflect that this time last year I was to have my first Chemo session. So busy reflecting that I haven’t hailed you all and said Happy 2016, or thought to convey how profoundly grateful I am to you …I am, I hope you know.

HAPPY 2016! May you give up on all the goals that you have to use every ounce of will power and every bit of grit and determination to achieve, and be a little kinder to yourself and eat more veg :D

Many of you have been through the wringer with your health or the health (physical/mental and emotional) of a loved one. Some have crossed the veil, becoming the gentle whisperings of spirits that imbue hearts and minds with their gentle essence. My thoughts and prayers are with you.

I am feeling fantastically well to be fair, not that I would know…on the medical front, metastatic disease is an odd bod in that way. My sister, bless her heart, said recently, “People are always asking me how you are. I never do know (slight pause…we were on the beach, quickly becoming like Olaf in a Japanese steam room, so taking a breath here was quite acceptable) when are you going to get sick?” It’s a fair question and one that I have absolutely NO answer to. I just know I am not sick today and probably won’t be tomorrow either!

You know that age ol’ principle that when you make space (i.e. in this case my giving up all the “shoulds” in life) something else comes along and fills it…

I just caught myself saying, ‘who in their right mind does this?’ Well, here goes…

* I have started my own Wellness and Lifestyle coaching business.

* I have signed up to do a graduate diploma in lifestyle medicine.

* And I’m in negotiations about being a wellness and lifestyle coach on radio (ok the radio show host texted me and I said yes… ‘negotiation’ just sounds posh). BTW here is the last one I did: https://soundcloud.com/woman-the-radio-show/breast-cancer-empowerment-through-choice?utm_source=soundcloud&utm_campaign=share&utm_medium=facebook.

* The article in the magazine (I haven’t seen it...Women's Day/Weekly, something like that) has come out. I imagine you might find it in a doctors surgery, or up in one of the many tramping huts’ long drops as bog roll, or jammed in a door to stop it rattling somewhere most like?? Regardless...recycle it :D

To be fit and fabulous, I am using your kind gifts of love to enable me to maintain my drug of choice – carrots. I am juicing 18kg a week of organic carrots along with beetroot, lemon and a simply revolting gag inducing green juice. I still see the medical herbalist (and get supplements that costs around $1000 each time) and a few random treatments like osteopathy and acupuncture and I remain very open to anything else that I ‘feel’ right about.

Thank you for enabling me to have that choice.

I do have my moments of self-doubt? It sounds a bit like this, “Who do you think you are? What makes you think you are any different to anyone else?” and conversely like this, “If just one person out there has cured themselves, then why not you?” So you can imagine it’s a bit like a chewed up toffee in my head sometimes.

I don’t pretend to be brave or courageous, and am incredibly uncomfortable when folk say that to me, because I am NOT any of those things, I am just me.

Whaia te maramatanga…..seek enlightenment

Go well, Wil xx

Share this update

Read 5 more updates

Read more

Latest donations

Rosina
Rosina on 20 May 2016
Belated monthly organic food top up
Private
Catherine
Catherine on 15 May 2016
$100
Guest Donor
Guest Donor on 07 Apr 2016
Organic top-up.
Private
Gosia Piatek
Gosia Piatek on 28 Mar 2016
Private
Annabel
Annabel on 19 Mar 2016
For you to explore on your MMT. Much love xx
Private

Who's involved?

Wilhelmina van der Aa's avatar
Paying to a verified bank account of Wilhelmina van der Aa
Page Moderated
The page has been checked by our team to make sure it complies with our terms and conditions.

Page Q&A

One question has been asked already. Check it out and ask yours here.

Any concerns?

Report this page
This campaign started on 7 Jul 2015 and ended on 1 Jul 2016.