Off to Wilson Centre on the North Shore today. Specialist paedeatric rehabilitation centre. Hoping things will be on the up now. Will be back to Starship for more IVIG treatment every 6 weeks. Lets go Taite
Mum and Taite having some quiet time. Had 5th/last plasmapheresis today and no probs. now just waiting for two weeks or so to see if makes any improvement. Then potentially on other 10 day round if nothing significantly improves. Had rehab doctor in today confirming that based on Taites lack or improvement so far we are looking at months (not weeks). Will have a better indication in maybe 4-6 weeks time...
In the mean time we'll be taking it day by day, week by week and just hang in there for our little trooper.
Lanie and I also want to say a MASSIVE thank you to all those people who have helped support us and offered support, all those very generous donations on the Give A Little webpage, the amazing Ohaupo community and Ohaupo Rugby Club fund raiser last weekend with special thanks to Lynaire McDonald, Briar Hallam and Donna Gray, plus the Ohaupo School and everyone else that we have forgotten to mention. We are truly grateful!
