The Foundation for Nager and Millers Syndrome are having a conference in Seattle in June, 2013. All children and families with these rare
Nationwide
These conferences only happen every 2 years, and it is a chance for Theo to meet other children like himself. His syndrome is so rare that this is an amazing opportunity.
Clip 'n Climbing! 8 March 2013
John Targett and his wonderful team and The Roxx Climbing Centre in Christchurch are on board with helping us get Theo to this years Foundation for Nager and Millers Syndrome conference in Seattle. They have generously given us 100 tickets to sell to kids young and old at $10 each to come along and climb on Wednesday 19th April between 5 and 8pm. 100% of this money will go to get Theo to Seattle - thanks John and the team at The Roxx! If you would like a ticket, please see www.caringbridge.org/visit/theodeheer for details :)
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