Violet Sophie Stephen was diagnosed with Infantile Tay-Sashs on the 05/07/2013. Tay-Sachs is a rare genetic disease, it causes a progressiv
Nationwide
Violet is the only infant in NZ with this form of the disease. I am raising funds to help her Parents afford a new car. It has become too difficult for them to take Violet out of the house because getting her and her equipment in and out of the old tired wagon they currently have is extremely difficult.
Update for 14/04/2014 14 April 2014
It's Monday, always rolls around way to fast! And what a weekend it was. After Violet's Tay-Sachs chose Violet? story ran in The Dominion Post? and was also on stuff.co.nz the donations just kept coming. We have more than doubled the original goal of $5,000. Our hearts go out to everyone who has donated and to everyone who shared such kind words of support, they really mean so much more than you can ever imagine. There have also been other offers of support from all over the place, form visiting a wildlife park to having movers help if it was ever needed and other support groups reaching out to Mum Grace Stephen? and Dad David Stephen?. Thanks again! Have a great day everyone.
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