Ocean is 7 years old with several rare conditions that effect 2 % of the world. She has out lived her life expectancy but its a struggle
Nationwide
Ocean most debilitating condition is Cyclical Vomiting Syndrome. She has episodes where she vomits for up to 5 days on end, these episodes come 3-4 times a month. Hospitals have told us to care for her at home to give her quality of life. we have trialled several options to no avail. Courtagen is offering a Mitochondrial Test which is as simple as spitting in a cup, and this can be tested and the exact cause for her vomiting can be found, and the right medication and therapy can be started. some people have shown improvement in days. This conditions is pure hell. We need help to raise the funds for this test.
Father
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