Kaya is a 9 year old boy who was recently diagnosed with Adrenoleukodystrophy (ALD). ALD is a progressive cerebral degenerative disorder ca
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Kaya is the oldest of 4 children, having 2 brothers and a sister who was born 2 days before Kaya was diagnosed. The young family have just bought their first home and moved 3 weeks before Kaya was diagnosed. Kaya is fully dependent for everything. The family were told to expect a year with him and plan for 3.
Update for 24/02/2014 24 February 2014
We are just completely overwhelmed and so grateful, thank you.
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